Hypothyroidism - awful. (Update)

Discussion in 'The Pub' started by jordans0nly, Sep 25, 2019.

  1. thrashmetl

    thrashmetl Supporting Member

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    Do any of you guys have any other symptoms like random shortness of breath, random spikes in heart rate, panic attacks, days where you just have no energy, etc? A friend of mine suddenly started getting these symptoms as well as some of the ones mentioned above a few months ago and I’ve been his lifeline through it all. The doctors think he’s nuts half the time and don’t believe him, but have come back with a number of diagnoses including hypothyroidism, but none really seem to fit.
     
  2. grill

    grill Member

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    My wife had 1 removed. On the right side. It wasn't cancerous.

    I was sweating bullets since the diagnosis.

    I got pics of it too, lol. Looks like my liver.

    She's fine and no need meds.

    You can get by with 1 thyroid.

    I think she got meaner tho.

    :):(
     
  3. jordans0nly

    jordans0nly Member

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    Hmm. I've only ever been on the generic. I've asked my doc several times to get me to a specialist, keeps saying 'we're not there yet'. Hell, sure feels like I'm 'there', lol.
     
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  4. jbird

    jbird Member

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    No side effects...
     
  5. burner

    burner Member

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    Yup.
    I don't have hyperthyroidism or anything like that but I *am* a suicidal depressive, so I mean...there's that. lol
    I've been doing a lot better lately tho'.
    About a year or so ago I had a *really* tough struggle for a few months...sucked as much as anything can, yanno.

    I don't take any prescription meds for it tho'
    In the past I was prescribed Xanax for anxiety and insomnia but i eventually no longer needed it....years later i was prescribed Halcion, which....was just *lovely* for the insomnia bcuz it had a strong enough punch to help put me down but did not have any of the side effects I hated which were associated with the xanax...feeling hungover and other bad stuff.
    The Halcion would put me down and allow me to sleep for like 5-6hours and i would wake up just feeling so refreshed.
    It really helped a LOT and I recommend it for anyone who needs a benzo but hasn't found the RIGHT one.
    Now, I personally never had any trouble with benzos insofar as becoming addicted to or overly dependant on them BUT...people definitely can, u know, so please ALWAYS consult a doctor!!!

    The Dr.s have attempted several times to prescribe the SSRIs to me...prozac, celexa, buspar, etc., but they ALL had very negative effects on me including *increased* suicidal thoughts, so....had to nix that immediately.
    The Buspar was the absolute WORST!
    It literally changed me in a very bad way, for example....
    My personality, I would lie for no reason, steal from work...BAD stuff like that, which i could actually *see* myself doing but could not control nor *explain* it AT ALL.

    I never had anything BUT bad experiences with the SSRIs so obviously they were NOT right for me.
    That was around 20 yrs ago, tho' and haven't taken them since that time.
    Uh...the doctor *did* try to prescribe me something called Seroquel and it too was HORRIBLE for me.
    I mean, i only took TWO doses of the script and immediately knew it was bad news for me. lol

    There were a handful of other things they tried ro give me that I dont readily recall the names of, BUT my point being this.....
    ALL of the prescription drugs I've mentioned here were prescribed to me for one specific reason:
    The Dr.s wanted to get me OFF of the benzodiazepines.
    While I could totally understand their concerns, particularly at me age which was around 25-27 at the time, and those drugs most definitely CAN be dangerous for some people...it's just that I didn't personally have any negative effects or addiction issues.

    Definitely a case of dont fix it if it ain't broke....tampering with what *is* working by now introducing incredibly dangerous (to me) drugs into the mix.

    Anyway, I kinda' got off track there, but...
    No, I do not have hyperthyroidism but I *do* suffer with depression.
    Although as if late, say the past 6-7months I have actually been doing a helluva lit better!
    Of course the holiday season is upon us and that's typically when I begin to self-destruct.
    I haven't consumed alcohol in 11 years but when I *did*, I would usually "cope" by climbing into a bottle and taking up residence from about Thanksgiving until after my birthday. (Jan 9) lol
     
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  6. burner

    burner Member

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    ^^^^
    Long-winded there, sorry..

    For those of y'all who DO also suffer with depression (or hyperthyroidism for that matter) I wish you nothing but the best of luck!
    I know what a very tough road it is.
     
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  7. Fred132

    Fred132 Member

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    Yeah, bupropion is the generic name for Wellbutrin. Sorry that’s not an option for you.
     
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  8. MapleLeaf-Trem

    MapleLeaf-Trem Member

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    Hang in there bud! I have Hypo-thyroidism as well and currently at .137 - I fought the depression bit for a very long time as it turns out my thyroid stopped working around 27 or 28 and I didn't get it looked at until 5 years ago at age 40.

    Here it is 5 years after initial treatment and the depression started to dissipate about 5 or 6 months after my correct level was found - sure I was getting a lot more better days at first but it wasn't consistent. It's still a bit of a ride every so often but not nearly as bad as it was. The HT is amplifying the depression, we still must do things/avoid things in order to not start down that path.
     
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  9. jordans0nly

    jordans0nly Member

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    I agree. But right now, as it stands, haven't found much works for me on a bad day, except to sleep it off really.
     
  10. dude9478

    dude9478 Member

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    I'd go to a different doctor if you're having all of those problems and he won't refer you to a specialist. I know it's a chore to switch, but a good endocrinologist will figure out what to do to make you feel better/right. Good luck.
     
  11. bluesdoc

    bluesdoc Gold Supporting Member Gold Supporting Member

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    Some expertise here......

    There is a problem for some with standard endo treatment of hypothyroidism. Depending on TSH values to judge correct dose of levo sometimes misses the mark. They usually also check T4 levels, but, BUT, T4 is a minimally active form of the hormone. It must be de-iodinated to T3, the active form of the hormone. Some folks have inadequate enzymes to accomplish that. AND, the more T4 given, the higher REVERSE T3 levels go, which blocks active T3 (evolutionarily protective in times of famine to dial down energy production). Most endos ignore 'free T3' and reverse T3 - the party line is that those levels are unreliable. Many 'functional medicine' docs DO pay attention (ie, measure) those levels and prescribe T3 (Cytomel and other brands) along with T4 to dial in optimal response. Not everyone needs this, but any hypothyroid patient who does not respond optimally to T4 (levothyroxine) treatment should pursue this more thorough evaluation and treatment. Measure TSH, free T4, free T3, reverse T3 for a better picture of true thyroid function. Unfortunately, most general docs and endocrinologists use outdated protocols and often inadequate treatment (allopathic medicine is VERY conservative and very slow to change despite solid new data). Ideally, you want to shoot for a TSH close to 1, free T4 close to 1, free T3 3.6-4.4, reverse T3 ~10. One more thing - thyroid function, like many other hormones, tends to wane with aging. (think salmon - spawn and die :eeks ) Assessing levels (always correlate with clinical status) and treating appropriately can optimize global function in us geezers :aok

    jon
     
  12. Hush

    Hush Member

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    I'm Hypo. Currently taking 75 mcg of Synthroid. Before starting my most obvious symptom was being overly grouchy. Once we got the dosage right my emotions smoothed out. At one point I changed from Synthroid to a generic and it wasn't the same. I would get heart palpitations that would make me feel anxious. I now make sure to get the branded version.
     
  13. jordans0nly

    jordans0nly Member

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    A lot of great info. But I'm not sure if my doc, when taking blood, only checks for the T4? I'd think the panel would be more detailed, but what do I know. Lol
     
  14. bluesdoc

    bluesdoc Gold Supporting Member Gold Supporting Member

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    They usually depend on TSH for the index of efficacy. +/- T4. Not enough.

    jon
     
  15. Sam Xavier

    Sam Xavier Member

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    Mrs X has hypothyroidism. Takes levothyroxin. No problems that I know of.
     
  16. kbraker51

    kbraker51 Member

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    I have a female friend that was diagnosed Hypoparathyroidism recently. With all the other things she was dealing with the depression, anxiety and other feels were masking the thyroid issues. ltd was to the point where she had paralysis in her face and limbs...
    My brother had problems too but i think his were repeated to his Blood sugar level.
     
  17. rickcard71

    rickcard71 Member

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    Wow, I have it. My only side affect was that I gained weight. Good luck. I’ve been on meds since and lost weight.
     
  18. strumminsix

    strumminsix Member

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    Hyperthyroid here. Sent me to the ER a half dozen times in 2013 with heart attack symptoms. The thyroid will mess with your mind, heart, mood, energy, everything. Be gentle with yourself and find a doctor who'll be as concerned with your symptoms as your labs.
     
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  19. gphill

    gphill Member

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    I was diagnosed after a blood test but have none of the symptoms discussed here. I'm taking levothyroxin and the doc just upped the dose because a recent test found that my numbers are still low. I thought that being prescribed medication was just to get some numbers back into line but after reading this thread and checking the symptoms of the condition on-line, I'm glad that it was found in the test. I haven't noticed any change in my mood, behavior or my body since taking the medication but I felt pretty okay before it too. My thyroid change must be a recent thing.
     
  20. jordans0nly

    jordans0nly Member

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    Well - last night, while sleeping, had a few times where it was hard to swallow. Now this am, hurts to on the right side of my throat. My aunt (who's had it for yrs) said it could be allergies. But I havent missed an allergy pill in months. Called my doc and told him, just crazy tired and the throat problem to see what he says.
     

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