Who has been diagnosed with GERD?

Discussion in 'The Pub' started by buddastrat, Apr 14, 2013.

  1. DaGlenster

    DaGlenster Member

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    I suffered for along time with acid reflux, finally went to the doctors and spent a year trying diet, pills and all that. Finally had surgery and that fixed it for good, though I do take PPI's daily and will for life. My condition was worse than what their medicine could deal with and if I didn't have the surgery I'm sure it would have gotten serious with Bartletts and all that. Do listen to your doctor and take this stuff serious, it can kill you and there is not all ways a natural/lifestyle cure.
    Mine came to light after taking OTC antacid gave me a kidney stone (Oh the fun)and the PPI's are not god but necessary for me. I've had C-Diff due in some part to the PPi usage so I take probiotics to counteract that. Better a pain in the ass than throat cancer.
     
  2. bluesjunior

    bluesjunior Member

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    I have suffered with reflux/hiatus hernia since was 20, I am now 63. Have twice had the camera down which found no ulcers just acid burn marks. Apparently my body makes too much acid. Over the years I have tried most everything available other than surgery. I went onto Omaprazole in my 40's and was able to strike a balance with that unless I was stupid and ate the wrong things at the wrong times (curry washed down with beer just before bedtime eg) stupid I know but nevertheless we all do similar at times. Around a year or so ago and despite cutting out everything that is bad for it I was really bad waking up in the middle of the night with a mouthful of bile/acid. My doc took me off the 2x25mg Omaprazole and put me on 30mg Lansoprazole 2x daily which he rightly as it turned out reckoned were better for my symptoms. Along with this he asked me to take 2x10mg Domperidon up to four times daily. Domperidone is a pill that helps to push your food through your gut faster and theoretically therefore pushing down the food level in the gut/stomach and reducing the chance of reflux. After a month he reduced the Lanzoprazole to 2x15mg and I have been pretty stable since. Other things I do are I have raised the head of our bed by approx 6" and nothing solid to eat after 7 or 8 o'clock at night. I still occasionally eat things I shouldn't but all in all I have learned to manage my reflux/hiatus hernia. I mentioned to my doc about surgery and he said it is one of those things that could work or could make it worse. He reckons that surgery is a very last option, so I shall try to live with mine as best I can. Although I could certainly lose a bit of weight this not so easy at my age I find and although I do a daily exercise regime and walk my dog an hour daily I find it isn't so easy to lose weight although I am not gaining I do find it difficult to lose any.
     
  3. Trevordog

    Trevordog Member

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    I had GERD for many years, and my GI doc said I had an enflamed esophagus.
    It was treated with PPIs for a few years, but then I had to have my gall bladder removed, because of gallstones.
    It turned out the gallstones were causing my GERD symptoms, and my condition completely cleared up. The only time I have reflux at all is if I eat something spicy right before bed.
    Rule out GS.
     
  4. Julia343

    Julia343 Member

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    Moi. Bad. I'm on Dexilant. I tried everything. I've had it for years.
     
  5. DavidLM

    DavidLM Member

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    Been suffering with GERD a long time...

    Frequent small meals and no big meals helps some. No meals for several hours before bedtime like people have said.

    Stopping all the the obvious trigger foods like A-Bone mentioned (spicy food, fried food, tomato, citrus, onion, caffeine, sugar, alcohol, etc.) helps some.

    No carbonated, gas inducing beverages helps some.

    I've cut way back on dairy, mostly to reduce phlegm, but that seems to have helped some.

    Losing weight to reduce pressure on that part of your body helps some. (But exercise induced GERD is also common, so watch out for that. insert facepalm)

    But if you have it bad enough, it will still be there despite some serious lifestyle and diet changes. I know. I've made the changes for years and GERD is still here.

    There is a (counter-intuitive) theory that GERD is from low acid which leads to carbs not being broken down properly in the stomach. The carbs then lead to an overgrowth of bacterial which produce low gas that increase inter-abdominal pressure and force the acid back up through the sphincter. If you have any acid in the esophagus, it will be painful and damaging. So if you have GERD bad enough and take heavy drugs , you will have to cut your stomach acid to zero to get relief. Cutting the acid to zero is dangerous in and of itself as the OP knows.

    If the theory is true, then just treating the symptoms will only lead to more GERD and the side effects from the acid reducers. Since the acid reducers make life tolerable it is hard to think of them as the enemy.

    I don't know if I buy this carb-low acid theory - but this is where some of the homeopathic advice comes from. I am reducing my carbs - it was probably a good idea anyway, as I am cutting weight right now. I want to get off Pepcid, the only thing I still take for my GERD. I got off Protonix a few years ago.
     
  6. '58Bassman

    '58Bassman Member

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    You think it's better to take the drugs and deal with their effects than to modify your diet? Why?

    I used to eat Tums like they were food and I haven't even bought any in over a year. I changed my diet at the same time and have only had heartburn a few times in the last 14 months.
     
  7. phoenix 7

    phoenix 7 Member

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    I had GERD for a while and was on Prilosec for a couple of months. Then it went away when I reduced my coffee intake. I occasionally feel it coming back just a little but then it backs off. Good riddance.
     
  8. m@2

    m@2 Member

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    Was diagnosed with GERD last year. Very similar experience as you. It is pretty scary when it really kicks in. I have found that eating MUCH slower, chewing longer and cutting down on bread/grains did help a bit.
     
  9. grill

    grill Member

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    wow, this is so weird.

    got a friend, (long story) but he found Omeprazolein his wife's medicine cab along with
    Zetia and 5 others we haven't got to look up yet.

    she is sickly and won't tell him why, go figure.
    so we are doing some detective work.

    from what he tells me, she is suffering so i feel for you buddastrat.

    not sure if drinking straight vinegar is a good thing in your condition.
    i mix a portion of apple cider vinegar and hot water and honey to taste for upset stomachs and colds.

    portions of each seem to be a personal taste but make sure it's in a big cup, 10-12oz.
    at least to start.
    (mostly water)

    good luck.
     
  10. Rattles

    Rattles Member

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    Yep! Been taking 2 Nexium a day for the past 8 years.
    Before that I had been on everything else. Sometimes still have issues at night.
     
  11. TheRockDoc

    TheRockDoc Member

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    Feel free to IM me; I'd be very happy to chat with you off the board

    TRD
     
  12. partytrain

    partytrain Supporting Member

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    I was diagnosed with GERD about 2 years ago. Went through the same slew of tests. Was sent to the ER once to check for a heart attack, had a 24 hour heart monitor attached, stress test, all of that. It was the GERD. I was just encouraged to get on the prilosec/omniprozal route. I use those if it ever gets going again (just had a couple of days where it was acting up), but mostly some really small changes to my diet worked. Adjusting my carb intake was the key. Not cutting them out completely, but really just being aware of how much I'm taking in, and making a few good choices. With my original diagnosis, it would be pain that would last for a few weeks, followed by a few weeks without. Now I'm mostly pain free, with a day or two that pops up here and there. Like last thursday/friday. But prior to that, it's been at least 4 or 5 months since anything. And again, nothing as intense or lasting as long as when I was originally diagnosed. Best of luck.
     
  13. whitehall

    whitehall Member

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    Long time on/off gerd sufferer. All the things work to some extant, blocks , etc. But the thing that worked best for me was writing down everything I ate and finding my triggers. Everyone's will be different. When Nexium first came out years ago I got it. Wow, it was like a miracle drug. I could drink 2 Martinis and eat a Pepperoni pizza before bed with no probs. Not that I did, but the drug was that good. 12 months later I had Asthma. Asthma ? WTF ? you don't just get that at 45 with no family history. I stopped the Nex. , guess what ? the Asthma (?) went away. Doctors don't always know what they are doing. 10 years later, I know my triggers. I maybe have some reflux once every week. And its never really bad . I take one Pepcid complete and I'm good for a couple of days. You have to switch up the meds or you get too used to them and they don't work so well. I like Prevacid too, I find I can take one for 3 days in a row and then be good for 6-8 days. Experiment, only you will know what's best for your body.
     
  14. buddastrat

    buddastrat Member

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    Glad that stuff worked. I see this is so common. Prilosec did work for me, but I was armed when all this chest pain came up. Thing with prilosec you can't just take it when you get the pain, it takes a day to kick in. Before this new pain, it's always been burning/sour stomach. It'd never make it up near the chest. Just a burning right at the top of the stomach. But I have this spasm/reflex thing with the burps/trapped air and tightness, and don't quite know how to handle it. It just comes up without warning and recently now without even eating. Scary and frustrating not being able to do anything.
     
  15. Sandy

    Sandy Member

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    I do not want to scare you unnecessarily, but have you talked to your primary care doctor about getting an endoscopy? You really should rule out Barretts Esophagus or esophageal cancer. Heartburn can and does cause cancer. I am knee deep in it right now with a fellow Gear Pager. He was dx with EC Stage III last June and had persistent heartburn for years and years. Popped acid reducers like candy. Hopefully your condition will be completely benign, but do not wait. Check it out, please. Also consult this website for more information www.ecan.org. Seriously, I am imploring you to investigate further if you haven't.
     
  16. thornie

    thornie Supporting Member

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    I've got it. It's awful. I can't eat any kinds of food I like any more, but I do it any way... Usually feels like I'm having a heart attack, never ending burps, painful gas.. etc etc. I get it probably 4 times a week. It makes life miserable. The only real relief is to basically stop eating every kind of food that I like, which I refuse to do. It's a trade off.
     
  17. wilerty

    wilerty Member

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    There is some good advice here. Each person is different, so what may work for someone else may not work for you. I had it very bad for several years but adjusted what I eat and medications so that I now rarely have any and don't take medications daily. In my case Prevacid not only worked the best it was the only thing that worked. When you feel like your have something in your throat and really want to burp ... take a Gas-X pill ... it works very well. Pay attention to which foods cause you a problem. In my case the worst food was any kind of baked chocolate, like a brownie. Caffinated sodas also were bad, like Pepsi.

    This is a serious issue and "trying to eat better" as you state in the first post is not an option.

    Gerd is like diabetes ... ignore it at your peril ...
     
  18. Ladhilbluesband

    Ladhilbluesband Member

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    GUYS, guess what? There's a huge misconception about GERD....sometimes it's caused by TOO LITTLE ACID, NOT TOO MUCH. There are treatments such as taking lemon juice when you have symptoms because it's not too much acid, it's not enough. Do some digging and you'll find data to back up my crazy claim.

    OP....I have had HORRIBLE stomach problems the last 4 years. I have been to every known specialist and even went the ND route.....I'm a lot better now but not 100%.

    I never get heartburn, I get an upset stomach and bloating a LOT. If I cut out Ll the fun things in life....alcohol, dairy, tomatoes, greasy, spicy food, coffee etc...If you cut all that out...I'd be fine but I can't, I have to moderate myself. I'm slowly trying to get off of PPIs that I've been on for almost 10 years, it's ALL diet but no one wants to hear that.
     
  19. Sandy

    Sandy Member

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    I am going to once again chime in here. You can have persistent heartburn, and then it go away. Do not be lulled into a false sense of security. Sometimes symptoms go away, but the damage continues. If you suffer acid reflux, GERD, heartburn, et al, and take PPI's, inquire about an endoscopy. Esophageal cancer is deadly, and horrific. Once again, the website to consult is www.ecan.org
     
  20. Sid

    Sid Member

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    I had GERD for 4 years....a drastic change in diet,routine and addition of probiotics changed it by 90%..pm me if you wanna talk about it
     

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